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Baby Elijah Update

I just spent the day today, with Elijah’s brothers, while he and his mommy went up to Atlanta to get a CT Scan. We don’t know the results of the scan yet. They are looking to see if his lungs are healed enough to put a port in his chest to administer his chemo. The central line he has right now has become difficult for them to keep in good condition. He pulls at it, and it seems to always have a rash around it. Poor little dude.

Looking at Elijah, you wouldn’t know that he has anything wrong. He’s a happy little fellow, always quick to smile! I hope things look good enough for them to get this procedure done. It would ease up the stress on mom quite a bit and hopefully make him more comfortable.

Staying with Elijah’s big brothers is a joy for me. I just love those little guys. They remind me of my boys when they were toddlers. The cars, the books, the legos, the sippy cups, the peanut butter & jelly faces, Clifford the Big Red Dog, Thomas the Tank… etc. But most of all the snuggles! I love the snuggles!

Here are some photos that their mom (Amy) took of them a month or so ago.

 

🙂

hi-d

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Baby Elijah Update

Our prayers are working and he is slowly showing signs of progress.

He is still being tube fed and still getting his chemo every week, but his little blistered body is healing up and he has enjoyed being held by his mamma and daddy quite a bit recently!

Thank you for all your prayers for this little guy. Please keep them up… they are being heard!

May God wrap his arms around this little family and give them courage, peace and comfort during this stressful time.

hi-d

 

 

 

 

 

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Baby Elijah Update

From his parents Amy & Brian:

“Elijah’s nurse said he had a pretty good night. He popped another temperature, and although the cultures have been negative, they are putting him on some antibiotics just in case. They are doing a urine culture to check for a UTI too. The nurse is alternating Morphine and Ativan so that he doesn’t get periods of sleep and crankiness and can stay more even. He’s starting off slowly with his tube feedings and his nurse was swabbing his mouth with some breastmilk so he could enjoy the taste (and I bet it will benefit his sores too). She is a real character. We can tell she LOVES babies. She talks and talks and coos to them and holds them and provides such loving attention.

The Hem/Onc doctors say we can expect Elijah’s sores to look worse after the first treatment before they look better. They recommend waiting until around the second dose of chemo before trying to extubate him, since his airway is so swollen and sore. They’ll probably put him on some prophylactic antibiotics next week because the treatment could leave his lungs prone to infection.

Little Elijah smiled for me this morning and that just made my day!”

Please keep up the prayers for this precious baby boy.

Thank you,

hi-d

 

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Baby Elijah Update

I know you are all praying for him, and I am encouraging you to keep  it up. He can use all you’ve got. Here is the latest update from his parents on Care Pages (at Childrens Hospital in Atlanta).

“Elijah had a busy morning. He had his bronchoscopy to get a peek at his airway, after which they were going to extubate him, since he was doing so well. They had a hard time getting good images of his throat because he was so gunky down there. They said the lower airway looks good, but the upper airway has lesions and swelling. They tried to extubate him and use a helium/oxygen mixture but he was working too hard and really retracting, so they re-intubated him. They are keeping him calm and comfortable with some Ativan and Morphine. He is doing a fair to good amount of breathing on his own over the ventilator, though when they relax him so much it goes down, naturally.

He looks like he has more spots on his head than he did before. They said his mouth and throat sores are bleeding, so they are going to check his clotting. The chemo drug, Vinblastine, although given in a low dose, sounds like it could be pretty caustic, so it’s possible that it’s causing the sores in his sensitive tissues. Now that he’s on the chemo, we have to make sure to wear gloves when changing his diapers, because it apparently comes out of his body still potent.

They are also trying to get a couple wounds in his armpit and groin area to heal up, since they don’t get much air. They are also trying to find a good cream to put on his body to keep his skin moisturized enough to keep him comfortable, but dry enough to promote healing of the sores.

Last night I printed out some pictures for his big brothers (3 and 22 mos). I used ones from when he had fewer tubes in him. I also printed pictures of his fingers, toes and the cute name card the nurses made for him. Both boys enjoyed the pictures. Ian said, “Come out of the picture, baby Elijah!” He spent a long time holding the photo to his chest, looking at it, hugging and kissing it. We talked about Elijah’s spots that he has inside and out, and the special “straw” he has to help him drink his milk, and the stickers that measure his heartbeats. I’d been scared to show them pictures, thinking it might scare them, but they didn’t seem phased. They seemed happy to see their new baby brother and hear about him. This morning, Ian taped the pictures up on the wall so he can look at his baby brother all day. Our hearts just melted to see him loving his new brother like that.”

 I just hurt so much for this little family. Please, please keep them lifted up in prayer.

Thank you,

hi-d

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