Tag Archives: MRI

And the Son Shone Again

Today started very early for Dave, Gerrit and I. We aren’t early risers, but we managed to get to the children’s hospital, in downtown Atlanta, by 8:00 a.m. – right on time! (with morning traffic, it’s a little over an hours drive.)

After he was registered and “tagged”, we headed over to radiology and prepared for the “tunnel”! We found out that he was getting dye (so the doc can see everything clearer) and had to have an IV. No big deal really… for us. He wasn’t real happy, but nobody likes getting an IV.

 The nurse just loved him because he has such wonderful big veins! She actually said, “OH Gerrit, I love you! You’re every nurses dream!” I am sure after trying to get IV’s into tiny little arms every day… his big veins were a welcome break.

He doesn’t stomach seeing blood very well, so the nurse covered up the area where it had spilled all over (as it came pouring out of those great veins!) with a towel!

At the last-minute I opted out of going in and sitting with him during the scan. He can’t see us anyway, it’s VERY loud, the chairs are very uncomfortable, and I had some things to do along with me, so I stayed in his little room with the news on. It was actually nice. I got a lot done!

So he and his dad went off to the big magnet tunnel.

Even though we joked around, and laughed about stuff, tensions were high. It’s like we couldn’t wait to find out the results – and yet we wanted to enjoy these last few minutes of “normal”  before having to deal with the stress of the bad news. Not being pessimistic really… just more emotionally prepared this time.

Here’s last years visit.

After about a 45 minute scan, we headed over to see the doctor.

(Just like last years picture only he’s bigger and I’m older!)… right before the doc came in.

Well…

 

 

 

 

its GREAT news!!

The cyst in his spine has not gotten any bigger. It’s not any smaller either, 😦  but just so long as it’s not bigger… we are good to go! No exploratory surgery. No drainage device put in. AND… we can go two years until the next MRI (unless he has some symptoms of course – then we would head back in before then).

We are so grateful, excited, elated and crazy happy! We praise the Lord for answering our prayers! And we want to thank all of you who have been keeping him in your prayers too! Thank you, Thank you!!

 On the way home, as the sun came out from behind the rain clouds, I thought of all the trips we’ve made up there to the hospitals. All the IV’s that kid has had in his lifetime, and how many times we, as his parents, have had to hand him back over to God. I was feeling so grateful and blessed right then… knowing that God has had Gerrit in his arms the whole time. He’s been holding us as well. I know he has great plans for Gerrit. Great plans… and I can’t wait to see what those are!

So, thank you again for your kind words and prayers for Gerrit.

Now, off to a good nights sleep!

Hugs to all,

hi-d

 

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Filed under Chiari Malformation, In The News

Gare-Bear Update

Please go to the Gare-Bear Update 9-09 page to the right, or click on the photo to read about his recent MRI results.

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hi-d

OOPS.

I can’t make the link work in the photo. So click HERE to read his update.

(dog-on-it. I’ve seen it done. I know it can be done. **heavy sigh** I can’t figure it out.)

Well, alright. I must be having a brain toot.

This time I forgot to add the link to “HERE”!!

Ugh.

Time for bed now!

🙂

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Filed under Chiari Malformation

Medical Bracelet

For those of you that have read Gerrit’s Chiari story and where awhile back I decided to get him a medical bracelet, well, I just want you all to know that he is wearing it and truly isn’t apprehensive about wearing something that says “fragile neck“. I had thankfully misread his reaction. He leaves the room when I talk about his Chiari because he can’t stand any talk about the inside of the body! He abhors medical talk. No chance of him being a doctor I guess. bummer.

Anyway, just wanted you to know that he is gladly wearing the bracelet and was sweet as can be about it.

augustdaysB 216-cb

By the way, he has a much overdue MRI coming up on September 21. We have been battling working it out with the insurance company for over a year now. “Our” hospital no longer has a pediatric neurosurgeon, so they want to send us to another hospital in Atlanta, but they don’t take our insurance company. (Even with all this hassle – I still don’t want Government provided health care.)

I’m not worried or nervous about this MRI. He is doing great. But I will admit, it is nice to get the reassurance from a neurosurgeon every couple of years that everything is where it should be!

🙂

hi-d

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Filed under Chiari Malformation

Gare-Bear…his journey…

Click here to read Gerrit’s Chiari Journey.

The day before surgery
The day before surgery

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Filed under Chiari Malformation, Real Life on My Planet